2009. Shiloh Pepin was born with Mermaid Syndrome, or Sirenomelia, one of the rarest conditions known to man. This condition means the foetus fails to develop normally below the waist, resulting in a fusion of the lower limbs. Of the few foetuses that actually make it to birth, most die within hours of leaving the womb.
On October 24, 10-year-old Shiloh Pepin died after spending a week in the hospital with pneumonia. She stayed active and upbeat until the end.
Film Duration: 42 min